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Rolland v. Cellucci: State to settle 10-year old complaint
(June 2008 Issue)

By Phyllis Hanlon

In 1998, the plight of more than 1,000 individuals with mental retardation or developmental disabilities living in Massachusetts nursing homes garnered public attention when Rolland v. Cellucci was filed. The class action suit sought to place these patients in suitable community settings and provide appropriate treatment for those remaining in the nursing facilities. That battle is finally closer to a happy ending.

According to Leo V. Sarkissian, executive director of The Arc-Massachusetts, these individuals were placed in nursing homes upon discharge from state institutions or when family members were unable to care for them at home. The Arc and the Center for Public Representation joined forces to integrate these individuals into a community-setting.

Jennifer Kritz, deputy communications director at the Executive Office of Health and Human Services (EOHHS), says, "The settlement in this long-standing case from previous administrations reflects the state's ongoing commitment to our Community First agenda."

Sarkissian applauds the state government for acting on this decade-old case. "I feel very positive about the outcome," he says. "I give credit to the new administration for wanting to resolve this issue. The state is looking to help people stay in their homes. I hope this will be one more development to encourage that way of thinking."

While most individuals involved in the suit anticipate new living conditions, some resist the idea of relocating. Kritz says, "Some family members and guardians of persons with disabilities may have questions and concerns about community-based services. The state will work closely with families to assure them that community-based residential services for persons with intellectual disabilities will meet individuals' needs and provide improved care for their loved ones."

Kritz reports that some 640 individuals have been recommended for placement. "Some class members may have conditions or personal circumstances that preclude transition from nursing facilities to the community and they will continue to receive active treatment," she says. The process will be individualized and based upon the person's needs, proximity to family and other factors, Kritz adds. Community placements are expected to take place over the course of a four-year period, she says.

Individuals will be sent to a mixture of group homes, family homes, accessible elderly housing, "whatever makes sense for the individual," according to Sarkissian.

He reports that The Arc plans to offer reassurance and education about the process. "We'll assemble a team to educate and explain this to patients and families," he says. "Resistance is due to lack of knowledge. Some will need education."

Additionally, Arc hopes to ensure that individuals who are leaving in later years of the transition receive appropriate help while in the nursing home and have information prior to their discharge.

Sarkissian points out that the legislature must fund the settlement before any action can take place. "If it's not funded this session, it will go back," he says. "Getting the legislature to understand the importance of funding the proposal might take some doing."